World Haemophilia Day is celebrated globally on 17 April every year. Hemophilia is increasingly coming into focus as a condition that is manageable and in many cases is still neglected.

This year, the World Health Organization put forward a proposal aimed at improving equity in care for people with hemophilia and other bleeding disorders, emphasizing long-standing deficiencies in diagnosis and treatment access. According to WHO, hemophilia affects about 1 in 10,000 people worldwide, but the true burden is likely higher.

India has the world’s second highest burden of haemophilia, with estimated cases ranging from 136,000 to 140,000, although only 20,000–30,000 are registered. More than 80% of cases in India remain undiagnosed.