Individuals suffering from Spinal Muscular Atrophy (SMA) and parents of minors suffering from the condition have written to Prime Minister Narendra Modi seeking his immediate intervention to ensure nationwide access to generic risdiplam under the National Policy for Rare Diseases (NPRD). SMA is a genetic, progressive and life-limiting neuromuscular condition, and access to treatment is time-sensitive, with delay having the potential to worsen the irreversible condition.
Access to generic risdiplam sought under rare diseases policy for people with spinal muscular atrophy
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